Information for Families

Jump to Questions Asked by Retinoblastoma Families

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Information about Retinoblastoma
Organizations that support retinoblastoma families
Online discussion groups

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Open and Print Letter about Retinoblastoma Testing for Family Doctors

1. Letter to Families about Retinoblastoma, May 2006
   Note: If you have any trouble reading or printing our info, please phone!

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Explanations of Retinoblastoma

1. Illustrated General Overivew, St. Jude's Hospital
   
   
2. Retinoblastoma, P Finger, MD, FACS



3. A Parent's Guide to Understanding Retinoblastoma, DH Abramson, MD, FACS

Sites with Additional Information about Retinoblastoma

1. Daisy's Eye Cancer Fund raises awareness and support for retinoblastoma families worldwide
   
   
2. Oncolink General Retinoblastoma Information
   
   
3. Retinoblastoma Facts The Childhood Eye Cancer Trust (CHECT)
   
   
4. Retinoblastoma Children's Cancer Web
   
   
5. Retinoblastoma HealthCentral General Health Encyclopedia
   
   
6. Prosthetic Eye Institute
   
   
7. Sarah's Retinoblastoma Homepage
   
   

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Canadian organizations that support retinoblastoma families

1. Canadian Retinoblastoma Society
   c/o 59 Bannockburn Avenue
   Toronto, ON M5M 2M9
   Phone: (306) 642-4993; Fax: (306) 642-3809
   Email: info
   
   
2. One Canadian family's site, with resources for all retinoblastoma families
   Email: info
   
   

American organizations that support retinoblastoma families

1. Candlelighters Childhood Cancer Foundation
   3910 Warner Street
   Kensington, MD 20895
   Phone: (800) 366-2223; (301) 962-3520
   Email: info
   
   
2. Retinoblastoma International
   4650 Sunset Boulevard, Mailstop 88
   Los Angeles, CA 90027
   Phone: (323) 669-2299
   Contact: Christina Saffran Ashford, President
   
   
3. Institute for Families
   P.O.Box 54700, Mailstop 111
   Los Angeles, CA 90054-0700
   Phone: (323) 669-4649
   Contact: Nancy Chernus-Mansfield
   
   
4. National Federation of the Blind
   1800 Johnson Street
   Baltimore, MD 21230
   Phone: 410-659-9314
   Fax: 410-685-5653
   Email: nfb
   
   
5. New England Retinoblastoma Parents Support Group
   Box 317
   Watertown, MA 02471
   Phone: 1-800-562-6265 Fax: 617-972-7444
   Email: click here
   
   
6. National Retinoblastoma Research and Support Foundation (NRRSF)
   900 N.W. 17th Street, Room 257 PO Box 016880
   Miami, FL 33101-6880
   Phone: (800) 226-2734
   Email: Tim Murray
   
   
7. New England Retinoblastoma Support Group (NERSG)
   10 Allen Road Bow,
   New Hampshire 03304
   Phone: (800) 562-6265
   Contact: Susan E. LaVenture
   
   

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Online discussion groups

1. Retinoblastoma Society Discussion Group
   
   
2. Kids Eye Cancer Friends Discussion Group
   
   
3. Association of Cancer Online Resources

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